Research for this report was conducted by Diederik Lohman, senior researcher with the Health and Human Rights Division of Human Rights Watch, jointly with Andrei Rakhansky of the Institute of Legal Research and Strategies in Kharkiv, Anna Kotenko of the Rivne branch and Alena Druzhinina of the Kiev branch of the All-Ukrainian Network of People Living with HIV. Diederik Lohman wrote the report. It was reviewed by Joseph Amon, director of the Health and Human Rights Division of Human Rights Watch; Rachel Denber, deputy director of the Europe and Central Asia Division of Human Rights Watch; Veronika Szente Goldston, advocacy director of the Europe and Central Asia Division of Human Rights Watch; Aisling Reidy, senior legal advisor at Human Rights Watch; and Danielle Haas, senior editor in the Program Office of Human Rights Watch. The report was also reviewed by Dr. Kathleen Foley of Memorial Sloan Kettering Cancer Center, Dr. Frank Ferris, director of international programs at the Institute for Palliative Medicine at San Diego Hospice, Kseniya Shapoval and Victoria Tymoshevska of the International Renaissance Foundation, Ludmila Andriishin of Ivano-Frankivsk hospice, and Andrei Rakhansky of the Institute of Legal Research and Strategies.
Alex Gertner, associate with the Health and Human Rights Division at Human Rights Watch, provided invaluable assistance, as did Mari Milorava-Kelman, Alla Khalitova, Olena Baev, Brooks Bono, Claudia Stoicescu, all interns with the Health and Human Rights Division. Production assistance was provided by Mignon Lamia, Grace Choi, Kathy Mills, Anna Lopriore, Veronica Matushaj, and Fitzroy Hepkins. Serhiy Dyoma translated the report into Ukrainian, and Igor Gerbich translated the report into Russian.
We are deeply grateful to the palliative care patients and their relatives in Ukraine who, despite battling serious illness, agreed to be interviewed for this report. We will use their testimonies and this report to fight for better palliative care in Ukraine so others who develop life-threatening illness—and pain and other symptoms associated with it—will not have to endure the suffering they faced. Similar gratitude goes to the many doctors, nurses, and government officials who spoke to us frankly about pain treatment practices in Ukraine. Without them, this manuscript would not have been possible.
We further thank Dr. Thomas Dzierzanowski, a palliative care physician from Poland, Dr. Pati Dzotsenidze of the Tbilisi State University, Faculty of Medicine and Institute for Cancer Prevention and Palliative Medicine, Department of Pain Policy, Dr. Eric Krakauer, director, International Programs, Harvard Medical School Center for Palliative Care, Dr. Stephen Passik, Memorial Sloan Kettering Cancer Center, Pavlo Skala of the International HIV/AIDS Alliance in Ukraine, and Viktor Serdiuk and Olga Skorina of the All-Ukrainian Council for Patients' Rights and Safety for their help with various sections of this report.