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Lawmakers Have Opportunity to Get Services to Hundreds of Thousands on Waitlists

The overwhelming majority of older people and people with disabilities in the United States, no matter how they vote, prefer to live at home rather than in a residential institution like a nursing home. Accordingly, millions of people access home and…
Disability rights activists and caregiving advocates hold a vigil in front of the US Capitol to urge Congress to include full federal funding for home and community-based care services in the budget reconciliation package on October 06, 2021 in Washington, DC.
News

Storm Highlights Need for Inclusive Disaster Planning in the US

Hurricane Ida made landfall in the southern US state of Louisiana last week, leaving thousands of people displaced and millions without power or access to other resources. Among those most at risk during the storm and in its aftermath have been people…
Occupants prepare to depart the Renaissance Place senior living apartments in the aftermath of Hurricane Ida on September 3, 2021, in New Orleans, Louisiana. 
News

Hospital Should Halt Medically Unnecessary Surgeries

Protesters picketed Weill-Cornell, a private institution that is part of the New York Presbyterian Hospital system, earlier this month, demanding the hospital cease medically unnecessary surgeries on children born with intersex traits, and investigate…
Demonstrators gather for an #EndIntersexSurgery protest outside Weill-Cornell hospital in New York City in August 2021. 
News

Sports Federations Need to Ensure Reasonable Accommodation for All Athletes

The Tokyo Paralympic Games begin this week with thousands of Paralympic athletes from around the world competing in 539 events in 22 sports. Sadly, one athlete who had earned a place on the United States team won’t be there. Rebecca Meyers, 26, a…
Rebecca Meyers competes in the Women's 400 m Freestyle S13 during day 4 of the Para Swimming World Championship in Mexico City, Mexico on November 5, 2017.
News

Solutions to Identity Verification Errors Urgently Needed to Help Those Facing Hardship

Lucy* (not her real name), a 29-year-old grocery delivery worker and mother of two in the US city of Houston, Texas, was under enormous financial strain when we interviewed her in May. She said her income had dropped steeply during the pandemic; she…
Workers in Texas may apply for unemployment benefits on the Texas Workforce Commission website.
News

Residents Need Access to Courts Amid Emerging Reports of Neglect During Pandemic

This week, Arizona legislators will vote on bill 1377, which would shield nursing homes from civil liability for negligence while providing services during the Covid-19 pandemic. At least 32 states have already passed laws or issued executive…
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News

Ensure Alternative Registration Methods for Covid-19 Shots

Most US states have prioritized people over 75 in the first wave of Covid-19 vaccinations, but obstacles to securing an appointment can hinder delivery. Most states are using online systems for scheduling. But while technology was once considered the…
Allegheny Health Network employees run a Covid-19 vaccine clinic at PNC Park in Pittsburgh, Pennsylvania, February 6, 2021.
News

Police Killing in Philadelphia Underscores Need for Supportive Responses to Emotional Crises

The killing of Walter Wallace Jr., a 27-year-old man with a mental health condition, in Philadelphia this week is now part of a long list of cases of police violence against people with disabilities in the United States. On Monday afternoon,…
A neighbor gathers at a memorial outside Walter Wallace Jr.'s home in Philadelphia, Pennsylvania, October 27, 2020.
News

Inaccessible Polls, Ballots May Disenfranchise Millions in Upcoming Elections

Approximately 38.3 million people with disabilities, nearly the equivalent of the entire population of California, are eligible to vote in the upcoming United States elections. This includes 5.4 million Black and 4.1 million Latinx voters with…
A woman departs the Beethoven Elementary School after participating in early voting in Chicago, October 15, 2020. 
News

New Easy-to-Read Guide for Residents and Families

The Covid-19 pandemic has had a devastating impact on people living in nursing facilities. More than 50,000 residents of nursing facilities and other long-term care facilities in the United States have died from Covid-19. In March, the US Centers for…
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News

Successful Challenge to Discriminatory Language in Alabama’s Emergency Care Plans

As experts warn that the Covid-19 pandemic could overwhelm emergency rooms across the United States, some state policies on emergency care have come under scrutiny for potentially discriminating against people with disabilities. Disability rights…
The picture shows the emblem of the United States Department of Health and Human Services.
News

The Path from Pride to Change

When I was 4 months old, I got polio, and since then I’ve been a wheelchair user. When I was 10, in 1975, my parents found a summer camp for children with disabilities in California and decided it would be a good experience for me.…
Carlos Rios, on the right and making a funny face, with his buddies at Camp Harmon in 1975.
News

COVID-19 Response Should Protect, Not Cut Off, Older People

Last week, in response to the spread of the coronavirus, the United States Centers for Medicare and Medicaid Services (CMS), the regulator for over 15,000 nursing homes in the US, announced a “no visitors” policy for all facilities across the…
The single-story Life Care Center, a facility in Kirkland, Washington, March 18, 2020.
News

Secure Devices Protect Users from Hacking and Surveillance

The United States Attorney General William Barr announced this week that the government has asked Apple to unlock two encrypted iPhones belonging to the perpetrator of last month’s fatal shooting at a naval base in Pensacola, Florida.…
Attorney General William Barr speaks during a tour of a federal prison in Edgefield, South Carolina
News

Elective Surgeries Should Be Patient’s Choice

The Massachusetts Medical Society (MMS) passed a resolution supporting the principle that intersex children should not be operated on until they are old enough to make the decision themselves. This deferral of all medically unnecessary…
A poster by intersex activist Pidgeon Pagonis
News

Coalition Calls for Stronger Oversight of City’s AI-based Decision-Making

Algorithmic decision-making is becoming the new norm in New York. City agencies use computerized algorithms to make important decisions about New Yorkers’ daily lives, from school assignments to public benefits evaluations and more. But…
A line of police cars are parked along a street in Times Square, in New York, December 29, 2016.
News

Resignation of US Rep. Katie Hill Highlights Severe Protection Gaps

  Katie Hill, a US Congress member elected to the House of Representatives less than a year ago, has just resigned, days after nude photos of her – which she says were released without her consent – were posted online by media outlets. Hill…
Katie Hill
News

Emergency Response Plans Should Be Inclusive, Accessible

The risk of wildfire in the US state of California led utility provider Pacific Gas and Electric Company (PG&E) to institute temporary power outages around the state earlier this month. But the decision jeopardized the health and…
A car drives through a darkened Montclair Village as Pacific Gas & Electric power shutdowns continue in Oakland, California, October 10, 2019.
News

States Can Protect Open Internet, but Federal Rollback Upheld

Firefighters struggling against one of the largest blazes to hit California in 2018 had to pause and turn to a much more mundane fight – with their internet service provider. In the midst of the blaze, data speeds slowed to a trickle,…
A router and internet switch are displayed in New Hampshire, United States
News

Courts Should Protect the Public, Not Duck and Cover

Today marks 11 years since the Electronic Frontier Foundation filed a federal lawsuit against mass surveillance in the United States on behalf of Carolyn Jewel and other AT&T customers. When it eventually concludes, this case will…
A notice of electronic surveillance is posted near a 95-by-50-foot American flag unfurled on the side of an apartment complex in Manchester, New Hampshire, U.S., June 14, 2017.